Livi got Chemo on Monday and from then on just wasnt feeling well at all, she went to school on tuesday but her teacher said she was acting very tired all day, I put her in the car and she slept untill about 5 that day. Then just day by day she just kept on getting more tired and started developing mouth sores. (always happens to us!) Poor girl :( so I was having to use oxycodone more and more. Friday she woke up and her mouth sores were horrible, just aweful, she also had sores on her bum which leads me to think she has the same thing she did last time she was admitted; when the sores go down the throat, through the intestines and out.....She of course didnt want to eat or drink anything except apple juice (what a help that is...) and I would just add a packet of Duocal to it. (adds 300 calories and 5 grams of protien) But that wasnt enough! I knew she was probably totally dehydrated.
Saturday she started to develope a fever. Just a low grade one, but I kept my eyes on it. By about 4:30 it started getting higher, it was 100.4 so I called the Oncologist on-call. She told me I should probably just bring her up to the hospital so they could look at her because if she has an infection she needs antibiotic.
When we got there Livi's fever was 101.5 so they gave her some tylenol and started a CBC. They also started her on IV antibiotics right away just in case.....when they got her counts back they were good, her ANC was 1400 so they just sent us home and said to just try to stay on top of her medicine as much as possible and do a follow up the next day.
Wednesday, November 17, 2010
Tuesday, November 9, 2010
Monday, November 8, 2010
Clinic Day 11/8/2010
Pretty girl all ready for clinic today! It was just me and Liv going up today, my sis usually goes with us but Livi's appointment was so early that I didnt want to wake Ryker boy up to take him to a babysitters so she just stayed at my house with him. It took us 2 HOURS to get up to clinic, traffic was HORRIBLE! It was raining and people were just driving EXTRA slow to be safe which I totally get but seriously people!! haha well we got there fine, just extremely late for her appointment....SORRY!
Look at this awesome toy! Livi loves to look at things while she gets her port in, it helps her focus on something else, toys like this, or books or a movie sometimes help.....SOMETIMES, she still has an extremely hard time with her port but she now realizes that its just something she has to do for the time being....
VINCRISTINE PUSH
Eating lunch because we were at clinic for so long they let her order some ramen....
Today was such a long day. She also had a lumbar puncture to get Methotrexate injected into her spinal fluid, she got Vincristine and Methotrexate, she got ramen, she also had a long nap. She did so good for her LP though, she usually wakes up extremely grouchy and wanting to get the heck out of there but it did take her about 45 minutes to wake up from it, she was so exhausted from waking up so early and hopefully the extra sleep altered her mood a litte, when she woke up she was a very happy camper!
This was the last day for this course until we start the dreaded DI....I'm so scared and so overwhelmed thinking about it. I hope it isnt as bad as I hear....but I'm preparing for the worst. Its also going to be over Christmas which will be a HUGE bummer for us! She is taking all of this very well though and I love her so SO much! She is such a trooper and we're rooting for her!!
Thursday, November 4, 2010
Everyone Hail to the Pumpkin Song
Ryker playing in the leaves, he was actually 2 things this year, Bumble Bee and Buzz Lightyear
Our little family in front of Grandma Cooper's Clown Mobile...
We are big Halloween people. We went all out this year. Mostly because I think our kids LOVED that we dressed up with them. Chase was a scary clown guy, and I was Raggedy Ann (Livi called me her "Dolly" all night long) it was really fun for us. This year Halloween was a day full of fun activities and lots of candy! First off we went to Grandma and Grandpa Cooper's house to go trick or treating on Spanish Fork main street. We had lots of fun but there were SO many people! It made me really really nervous so we left pretty quick. Livi's ANC has been pretty good lately, but why should we chance it with thousands of germy people all around us? Then we went to our wards trunk or treat which was a blast, there were so many awesome costumes! They had a contest and I wish we would have stayed after to see who won because that would have been interesting. After we got home from that it was POORING rain....like BIG fat rain! It soaked us from the time we got out of the car to the front door of our house....we had to decide then what we were going to do if the rain didnt quit.
We headed then over to Grandma and Grandpa Johnson's for chowder in bread bowls (new awesome, delicious tradition) and waited for it to stop raining long enough to get the kids out to a couple of houses trick or treating the old fashioned way. We set off for Grandma and Grandpa great's house to trick or treat their neighborhood (our ward growing up) which was so fun we got to see lots of faces we havent seen in a long time!
We got home about 930 and the kids were pooped. We skipped baths and watched Halloween Town on the disney channel (very scary for the kids...) and fell asleep. It was such a fun day and the kids got tons and tons of candy which I actually let Livi (and Ryker..shhhhh) eat whenever she wants because she wont ever eat anything anymore! (Horrible of me I know haha) It was a very fun day though. HAPPY HALLOWEEN
Monday, November 1, 2010
Clinic Day 10/28/10
This week at clinic was really jumbled....We got there and started right away doing crafts. We got called back, did her vital signs and everything looked awesome! She started gaining back some of the weight she lost in the beginning of October which was so relieving! FEEHEW! She also has a yeast infection from all the antibiotics they gave her last week, poor girl, but she's doing so good!
Little miss Livi was pretty sneaky this week, you see she had a lumbar puncture scheduled for 1:30 (SOO LATE IN THE DAY!) She isnt allowed to have anything to eat for 6 hours and nothing to drink for 2. Well she snuck a bite of Rykers poptart for breakfast....the girl was starving! Of course I got mad at her because I told her not to eat anything but how mad could I possibly get when she hasnt eaten anything all day.....Poor Liv! We saw the Dr and thats the first thing I told him, he said we cold either wait and have the LP done at 4 or just have it done next time we come either one they said it wasnt a huge deal when she gets the LP. We decided to do it next time and they made her appointment for 8:30, thank goodness! Why they had her scheduled so late in the day I dont understand but they really need to know they cant do that to starving little ones. Especially sneaky ones....
They also upped her dosage of Methotreaxate again to 175 MG! I couldnt believe it, we're making our way up there. She only got 140 last time so that was a huge jump! We're all loaded up on our Zofran (for nausea) and our Oxycodone and magic mouth was, so hopefully we'll be able to keep the side effects under control.
Oh how we love the crafts at clinic!
Getting her line flushed, she gets more and more interested in what their doing each time we go. She'll ask, "Is this a drink?" or "Is this my medicine?" or "Is that my blood work?"
Sitting on Mommy's lap. Normally I wouldnt say anything bad about the nurses we have in clinic, but this time I think our girl was new. She kept pushing Livi's needle in and out and moving it around, so so painful for Liv!! Usually they just have her move her arms around or stand up or something because her line is so positional. By the time I figured out what the heck she was trying to do I quickly let her know that she wasnt doing it right....Holy cow I was so SO mad at this nurse! She really hurt Livi. I mean its still already so hard for her to get her port accessed and now why dont we just freak her out some more about it?? Ok I'm done venting about that...
Clinic Stats:
Weight: 18.0 KG
Height: 105.6
ANC: 1200
HCT: 32.2
Until next time....
Monday, October 18, 2010
Clinic Day 10/18/10
When we got to clinic today there was 2 wagons full of toys for Livi to pick out something. It was from a family who's daughter had been in treatment 6 years ago. She was 2 when she started treatment and is now a healthy 10 year old! She raises steers every year and then with the money she sells them for she buys toys to take around to all the cancer patients. What an awesome little girl to have such a big heart. It was so cute and it was so good to meet someone who was all done and had a great outcome from chemotherapy!
This is her getting her Vincristine through her port, and taking it like a champ!
This is the one we hate (we hate both of them of course, but this is the one that makes the kids the sickest) Methotrexate....they uped her dosage this time even though they said they werent going to anymore but Dr. Lemons suggested it was for the best. And since he is the best Oncologist at that hospital I'm going to trust him. We're probably going to be in lots of pain tomorrow but he thought it was for the best to cure the Leukemia.
Here is how it is given, over a course of 20 minutes in this machine.
All done and ready to go home!
CLINIC STATS:
Weight: 16.8 KG (she is loosing lots of weight, time to start power packing)
Height: 106
ANC: 3200!!!!
HCT: 29.7
WBC: 6.2
She had an awesome time in clinic today. She got a game, watched a movie, was able to order chicken nuggets to her chair and meet some new friends. This was a clinic day we actually enjoyed. First time I have ever been able to say that....She is such a trooper and since they uped her dosage I am extremely nervous about the days to come. But we are all set with Oxycodone and magic mouth wash and nausea medicine, so hopefully we can keep the side effects under control and wont have to make any special trips up to the hospital this week. Thank you Jessi for watching Ryker for me as always, I really appreciate it with all my heart!
Buy some bows, help with bills!
My sweet friend Lexi wanted to help out Alivia and her family with some of their rising bills, so she decided for this week only (10/18-10/25) 40% of all sales from SugarandSpice1.etsy.com will go to Alivia and her family. She has the cutest bows, crocheted hats, flower bows, etc. Check out her website! Help spread the word! You can check out Sugar and Spice Baby Accessories' blog at
http://www.SugarandSpice4baby.blogspot.com/
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