This week has been a rough one :( Livi has been sick sick sick, it would just creep up on her at anytime, anywhere. Luckily we didnt do much this week so we generally stayed at home. All in all though she is doing really good. No mouth sores, that we can be thankful for! This week at clinic she got Vincristine and Dox0rubicin. It was a very short clinic visit! We were only there for 3 hours today (yes that is a very short visit, normally its 5-7 hours) Livi was crying when we were leaving because she wanted steak so bad....steriods man gotta love them! But she does get a week off from them now. So maybe she'll be getting back to normal soon......
Clinic Stats:
Weight: 17.8 Kg (about 39 lbs)
Height: 106.4 cm
ANC: 4700
We're so happy Livi's ANC is up, it might be a little too high but nothing they are worried about.
It just means that she will be able to go to her school Christmas party tomorrow, which she has been looking forward too all month! She hasnt been to school in weeks, she misses it so much and it breaks my heart when almost everyday she asks if she can go. Im a little torn in what to do. Her ANC is up but at the same time should I risk letting her go during flu season? She's bound to get sick if she goes, but whos to say she wouldnt get sick anyways?? Ehhh...The stress of my life....
We are so lucky to live in such a awesome neighborhood, my ward has been bringing us dinner every night we have clinic which is huge for me! After a long day and a long drive home, the last thing I want to do is cook dinner. So thank you so much ladies you have absolutely no idea how wonderful this has been for me!
Livi also had her appointment on Friday to get her PEG shots. The nurses said she did really well. I would have to disagree. She was throwing her body all over the place, arms, legs, basically any part of her body she could move, she was moving. It was horrible for me. Then we just had to stick around for an hour so they could watch her for a allergic reaction. She fell asleep, it was so quiet in clinic! There was probably 2 other kids there today.
Livi got this shirt from her friend staying in the ICS, you cant really see what it says because its giant, but is so cute it says "hair is overrated" Love it!
The awesome surfer santa from the Festival of Trees was in the lobby at Primarys, I think Liv was a little nervous around it, but it was seriously awesome.
She also got this cute bear from her little friend! Thank you Kambri!
Im so greatful Liv is doing so well. She really is such a trooper. I love you darn people!
ReplyDeletelivi sure is a cutie. i'm sorry this week has been so hard. steroids! ah - i hate them. but at the same time, i giggled at her crying for steak. there are some funny moments. i hope things go well for you this week! hang in there!
ReplyDeleteWow! Her ANC is up high! Why is it so high do they think? Well anyway thats awesome! I hope she does get to go to her school Christmas party! That would be so fun for her! I'm so glad clinic was so fast for you guys! There's nothing better. And no mouth sores is SO AMAZING!! :) YAY! I love you guys. Hopefully we can come play soon...? You let us know. I'm also glad you guys get a week off of steroids ;) Hopefully she got some steak..... haha.
ReplyDeleteCan I tell you how happy we are here at the Flamm House to hear that Livi has NO MOUTH SORES! HOORAY! Today has not been a good one for me and that just cheered me right up. :)
ReplyDeleteLOVE the shirt. It made me giggle.